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International Campaign for Cures of Spinal Cord Injury Paralysis

Affiliate Groups

  Christopher Reeve Paralysis Foundation
 

Christopher Reeve Paralysis Foundation

 
  The Christopher Reeve Paralysis Foundation (CRPF) is committed to funding research that develops treatments and cures for paralysis caused by spinal cord injury and other central nervous system disorders. The Foundation also vigorously works to improve the quality of life for people living with disabilities through its grants program, paralysis resource center and advocacy efforts.

In just a few years’ time, CRPF has given $26 million in research grants to the world’s best neuroscientists. CRPF grants are catalytic. We support new initiatives, take smart risks, and make sure our research dollars are spent to do the most good. And the research we’re funding has the potential to cure not only paralysis, but other devastating diseases, such as Parkinson’s, Alzheimer’s, ALS and stroke.

In addition, through our Quality of Life Grants program, CRPF has awarded more than $2.5 million in grants to organizations that help people with disabilities live more independently and in a manner that is dictated by their abilities, not their disability.
   
  Australasian Spinal Research Trust
 

Australasian Spinal Research Trust

 
   
ASRT is committed to taking a strong stance on finding a cure for paralysis. For years it was believed that regeneration of the damaged spinal cord was not possible and the community, therefore, accepted that this was a condition that had to be lived with. However, this is no longer the case. Global scientific opinion is that a cure could be found within a few years if adequate research funds are raised.
      
ASRT believes that human beings should not have to suffer in this way. They shouldn’t have to and fairly soon, they won’t have to. It is the desire to find a cure to relieve the distress of the injured and their families that motivates us in our efforts to raise funds for research.

                    The Trust is dedicated to finding a cure for paralysis via:

  • Promotion and funding of research.

  • Fostering co-operation between all disciplines engaged in central nervous system research regeneration and direct relief.

  • Monitoring research progress of all scientists who are funded by or through the Trust.

  • Co-operation with international efforts in the field.

  • Dissemination of information about developments in research.

   
  French Institute for Spinal Cord Research
 

French Institute for Spinal Cord Research

 
 

IRME is a private non profit organization founded in 1984 to promote and support the research on spinal cord injury responsible of the severe disability of 40 000 paraplegic and tetraplegic people in France.

The activity of IRME is to stimulate basic and clinical research in preventing or restoring the lost functions and minimizing the disabilities caused by a spinal cord injury.

IRME has largely contributed, during the 15 past years, towards progress bringing scientists new directions for research and changing the perspective for paralysed people.

   
  International Spinal Research Trust
 

International Spinal Research Trust

 
  Spinal Research is the only charity based in the U.K,which is dedicated to funding research on an international scale with the sole aim of ending the permanence of paralysis caused by spinal cord injury

The purpose of Spinal Research has always been to fund research into the repair of human spinal cord injuries. This research has been very successful, and has now reached the stage where some techniques for partial repair of spinal cord lesions have been demonstrated in animal models. It is probable that if the same techniques could be used in human spinal cord injury patients they would show an improvement in their condition, although not a complete cure. The first trials of these treatments on paralysed people are therefore now being contemplated.

As Europe's major spinal cord injury charity, Spinal Research sees it as its duty to help provide the infrastructure that will be necessary to make it possible for these experimental techniques to be applied to the treatment of paralysed people.

The Trust has started two new initiatives to make this possible; the Research Network and the Clinical Initiative.

 
  Kent Waldrep National Paralysis Foundation
 

Kent Waldrep National Paralysis Foundation

 
  The Founder, Kent Waldrep, originally organized the American Paralysis Association (now the Christopher Reeve Paralysis Foundation) in 1982.  In 1985 he left the APA and founded the Kent Waldrep National Paralysis Foundation. KWNPF has striven to increase awareness of paralysis due to spinal cord and brain injuries.  As a result of brain and spinal cord injuries, 100,000 people are permanently disabled every year.  Two-thirds of those injured are people under 30, making spinal cord and brain injury the leading killer and disabler of children and young adults.  Through efforts, they hope to assist scientists increase the rate and level of recovery for newly injured victims through the development of new drug therapies and treatments, as well as finding a permanent CURE for those who have been afflicted with chronic and long-term paralysis.
   
  The Miami Project To Cure Paralysis
 

The Miami Project To Cure Paralysis

 
 

The Miami Project to Cure Paralysis, a Center of Excellence at the University of Miami School of Medicine, is the world's largest, most comprehensive research center dedicated to finding more effective treatments and, ultimately, a cure for paralysis that results from spinal cord injury.

The Miami Project was founded in 1985 through the vision and dedicated efforts of Dr. Barth Green, an internationally recognized expert in the field of spinal cord injury. National attention focused on the Miami Project following the injury of football legend Nick Buoniconti's son, Marc. The Buoniconti Fund to Cure Paralysis raises money exclusively for the Miami Project to Cure Paralysis.

   
  The Paralyzed Veterans of America
 

The Paralyzed Veterans of America

 
 
The Paralyzed Veterans of America, a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of our members—veterans of the armed forces who have experienced spinal cord injury or dysfunction.
PVA will use that expertise to be the leading advocate for:
  • Quality health care for our members,
  • Research and education addressing spinal cord injury and dysfunction,
  • Benefits available as a result of our members’ military service,
  • Civil rights and opportunities which maximize the independence of our members.
   
  The Rick Hansen Institute
 

The Rick Hansen Institute

 
 

In August 1997, the Rick Hansen Institute was created to help find a cure for paralysis, and improve the health and quality of life of people with spinal cord injuries. Starting with the $24 million legacy from the Rick Hansen Man In Motion World Tour, Rick and his team, have wisely and successfully managed and created innovative partnerships and programs. As a result, more than $137 Million has been directed to a wide variety of activities including research, rehabilitation, education, awareness and wheelchair sport.

Today, the focus is on accelerating the discovery of a cure for spinal cord injury. Through its leadership, the Institute brings together scientists, philanthropists, governments and private organizations to establish and pursue common goals and priorities, in support of spinal cord injury research. The Institute is a founding member of a consortium of the world's most prominent private spinal cord injury research funders.

   
  Spinal Research Fund of Australia, Inc.
 

Spinal Research Fund of Australia, Inc.

 
 

The Spinal Research Unit was set up in 1996 to create clinically useful treatments for people with spinal cord injuries.Their aim is to take current research knowledge from the laboratory into clinical trails. They are working with a plan created by their researchers to do this.
To do this, they have been working with the industry to set up a network of laboratories in Australia. Their hope is that through the laboratories we will discover effective treatments for spinal cord damage and improve people's lives by giving them back some mobility and independence.They are working closely with the Accident Surveillance Unit to produce a team that is capable of designing, implementing and monitoring clinical trials.

Their focus is on three key areas: Raising funds to allow our research to continue;
Further developing our research network to cooperatively work on new treatments; and
Encouraging a neurosurgeon to develop surgical procedures to trial new treatments in humans.

 
What is the ICCP?
What is the ICCP's mission?
What is the background of the ICCP?
Who are the founding members of the ICCP?
Who are the newest members of the ICCP?
How can my organization become a member?

The ICCP

The ICCP exists as a "peak body" consisting of affiliate organizations working to fund research into cures for paralysis caused by spinal cord injury.  The ICCP coalition consists of member organizations working in their collaborative mission "to expedite the discovery of cures for Spinal Cord Injury Paralysis".

If you are an individual with a spinal cord injury, or you are interested in assisting in the quest for a cure, they encourage you to contact one of their affiliate members in your region to find out how you can participate in fundraising for research.  If you are unable to locate the information you are looking for, please contact them and they will seek to address your question.

In the following pages you can read about their group's background, their mission and their group objectives.  In their web site, they will also link you to the web sites of their affiliate members.   ICCP members represent many of the leading spinal cord injury research fundraising charities around the world.  I encourage you to spend time at these sites, as they offer a wealth of information about spinal cord injury, current research and ways you can help to discover the cure.

Mission

To expedite the discovery of cures for spinal cord injury paralysis.

Background

For almost twenty years, a small number of charitable organizations throughout the world have worked tirelessly to promote research to find cures for spinal cord injury paralysis.  When they began their quest, the conventional wisdom was that paralysis and other consequences of spinal cord injury were incurable, and that once damaged, the spinal cord could not be repaired.  Today, those organizations can be credited with funding research that has realized many significant discoveries in the field, brining scientists new optimism and significantly changing the outlook for people suffering a spinal cord injury.  The question today is not if effective treatments and cures will be found, but a question of when.   With this in mind, those organizations promoting spinal cord research have met to determine the ways in which their collaborative efforts can hasten progress in this field.

Group Objectives

  1. Attract the best and brightest scientists, researchers and clinicians to the field of central nervous system nerve regeneration and repair, particularly those who are newly graduating, and encourage their career commitment to spinal cord research.
  2. Promote public support for the development of effective treatments and cures by highlighting the individual vulnerability to injury and the benefits of cures to present and future generations.
  3. Promote government financial support for spinal cord research by highlighting the economic cost of lifetime care for those injured.
  4. Give consideration to conducting collaborative awareness and fundraising campaigns to promote the global nature of spinal cord injury and paralysis cure research.
  5. Promote linkages and communications between laboratories, scientists, clinicians and other relevant organizations.
  6. Promote heightened communication between fundraising groups and encourage shared utilization of resources and expertise.
  7. Encourage the development of strategies and priorities for the international field of spinal cord injury research.
  8. Evaluate the progress and success of the campaign against concrete measurable outcomes and report progress to the field.

The signatories to this affiliation to be known as members of the International Campaign for Cures for Spinal Cord Injury Paralysis.

Founding Members

Australasian Spinal Research Trust
Christopher Reeve Paralysis Foundation (a merger of the American Paralysis Association and the Christopher Reeve Foundation)
Kent Waldrep National Paralysis Foundation
International Spinal Research Trust
Miami Project to Cure Paralysis
Paralyzed Veterans of America
Rick Hansen Institute

New Members

They proudly welcome two new members to the group.  I invite you to visit their websites through the links below to learn more about each of these organizations and their missions and objectives.

French Institute for Spinal Cord Research (Institute Pour la Recherche sur la Moelle Epinièrè)
Spinal Research Fund of Australia, Inc.

Join Them

If your organization has objectives common to the ICCP and you are interested in becoming an affiliate, we would welcome your interest.  Please contact the ICCP for more information.

 

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