Ali Karabulut - Spinal Cord Injury (SCI) Pages

 

BOOKS RELATING SCI AND DISABILITY

In these book pages you will find inspirational and resource books and publications pertaining to spinal cord injuries, as well as recent best selling books. I am affiliated with Amazon.comIf you see any good in helping a qudriplegic guy, please start buying your book(s) from my link(s) below. Thus, this site will go on. Your help will be very much appreciated. Amazon.com makes great references or gifts for those with a spinal cord injury.  Most of their books are 30% off and shipping is free on orders over $25.

More books and/or publications will be added as I come across them.  Please contact me if you know of a resource not listed here.

SCI BOOKS PAGE 1  ---  SCI BOOKS PAGE 2 (HERE)  ---   SCI BOOKS PAGE 3  

  Able Lives: Women's Experience of Paralysis
by Jenny Morris
 
 
   
  • Hardcover: 227 pages
  • Publisher: Womens Pr Ltd; ; (May 1990)
  Don't Worry, He Won't Get Far on Foot
by John Callahan
 
 
 
This autobiography of a quadriplegic cartoonist is by turns hilarious, sad, sick, inspiring and illustrated with the funniest cartoons since The Far Side. First time in paperback.

From the Back Cover
"When people laugh like hell and then say, 'That's not funny', you can be pretty sure they're talking about John Callahan."

-- P.J.,O'Rourke, author of Holidays in Hell

"Actually Callahan goes too far, and he'll take you with him.... He'll move muscles you don't know you have." -- Roy Blount, Jr.

"John Callahan doesn't need feet to go far. He does it with guts, brains, fingers, and a wonderful sick sense of humor."

  • Paperback: 219 pages ; Dimensions (in inches): 0.66 x 8.03 x 5.21
  • Publisher: Vintage Books; ; Reprint edition (April 1990)
  Eleven Seconds: A Story of Tragedy, Courage, & Triumph
by Travis Roy, E. M. Swift (Contributor)
 
 
  Within the 11 seconds that inspired this memoir, Travis Roy realized his dream, then smashed into his nightmare. On an October night in 1995, Roy, a talented young hockey player, skated onto the ice for his varsity debut with Boston University. Eleven fateful seconds later, he was paralyzed from the neck down. Aided by the sure touch of Sports Illustrated hockey writer E.M. Swift, Roy's moving account of his accident and his rehabilitation--confined to a wheelchair, he's gotten some use of his right arm back--avoids the maudlin. Instead, Eleven Seconds is filled with grit, hope, humor, and a thoughtful young man's introspection on the meaning of sports and the adjustments that follow when the ability to play them is taken away.

In October 1995, ready to play his first game as a member of the Boston University hockey team, Travis Roy looked forward to the biggest day of his life. It was big but for all the wrong reasons. Eleven seconds into the game, he cracked his fourth vertebra and was paralyzed from the neck down. With coauthor Swift, Roy tells the inspirational story of his life after the accident. He still can't walk but has regained some mobility in his right arm and has come to realize that his life is worth...
  • Hardcover: 226 pages ; Dimensions (in inches): 1.00 x 8.75 x 6.25
  • Publisher: Warner Books; ; (January 1998)
  Fourth and Long: The Kent Waldrep Story
by Kent Waldrep, Susan M. Malone
 
 
  Playing in a football game between Texas Christian and Alabama in 1975, Waldrep sustained a spinal cord injury that left him paralyzed. He began extensive therapy, but the American medical profession agreed that nothing could be done for him, their gospel being that any paralysis that lasts for three to six months after spinal cord injury is permanent. But after learning that the Soviet medical profession did not agree, Waldrep spent a month in the former Leningrad, making some progress. Back in the U.S., he established a foundation to raise funds for research on spinal cord injuries. That foundation was merged with a larger group, and subsequently Waldrep was all but ousted from it; he established a second foundation and has seen the development of fruitful nerve-regeneration research, nerve grafting and the use of steroids (this last pioneered by the Russians), all of which have combined to change the view of the AMA. He and freelance journalist Malone grippingly depict not only the patient's but also his loved ones' ordeals in adjusting to paralysis. 40,000 first printing.
  • Hardcover: ; Dimensions (in inches): 1.00 x 9.75 x 6.50
  • Publisher: Crossroad/Herder & Herder; ; (August 1996)
  Meaning of a Disability: The Lived Experience of Paralysis
by Albert B. Robillard
 
 
  With his loss of speech, Robillard was forced to communicate through a lip-reading system developed by his wife and student assistants. Restricted by this form of communication and his paralysis, he soon learned the frustrations of making his meaning known. Hospital nurses wrongly anticipated his words. Those who translated for him inevitably distorted his meaning. Most of all, the casual pace of conversational give-and-take was disrupted. Old friends would leave before Robillard could provide...
  • Paperback: 208 pages ; Dimensions (in inches): 0.58 x 8.19 x 5.48
  • Publisher: Temple Univ Press; ; (May 1999)
  Miracles Happen: One Mother, One Daughter, One Journey
by Brooke Ellison, Jean Ellison
 
 
  In a similar vein is Brooke and Jean Ellison's Miracles Happen: One Mother, One Daughter, One Journey. When she was 11 years old, Brooke was hit by a car and was paralyzed from the neck down. Her mother, Jean, nurtured her with optimism and confidence, and 10 years later Brooke graduated from Harvard University, becoming the first quadriplegic to do so. This two-person account (in which the authors trade off chapters) covers a lot of ground: living with a disability, the importance of mother-daughter relationships and celebrating everyday wonders. The book's publication coincides with the broadcast of the ABC-TV movie about the Ellisons directed by Christopher Reeve.
  • Hardcover: 261 pages ; Dimensions (in inches): 0.99 x 8.57 x 5.82
  • Publisher: Hyperion; ; (January 2002)
  My Soul Purpose: Living, Learning, and Healing
by Heidi Von Beltz, Peter Copeland (Contributor), Heidi von Beltz
 
 
  With a budding movie and stunt career, von Beltz suffered near-fatal injuries during the filming of Cannonball Run in 1980. Damage to several neck vertebrae led to a harsh diagnosis of permanent paralysis with little chance of improvement. "She will never again move below the earlobes," one doctor told her parents. However, she was determined to disprove such medical opinions and to get on with living. Strong support from her parents and friends (Melanie Griffith is her closest friend) aided her recovery, as did Christian Science, holistic medicine, visualization, and hope. Her robust optimism about getting better--in the face of repeated negative medical opinions--was rewarded with physical control never deemed possible by numerous doctors, nurses, and therapists. After devoting herself to exercise programs and mental therapies for the last 15 years, she has straightened out her spine (S-curved by the crash), regained movement in every part of her body, and become a role model for others stricken with spinal injuries. This inspiring story offers both a view from a Hollywood insider and a testament to the power of her determined, positive will.
  • Mass Market Paperback: 283 pages ; Dimensions (in inches): 0.89 x 6.78 x 4.22
  • Publisher: St Martins Mass Market Paper; ; (February 1998)
  The Body Silent
by Robert F. Murphy
 
 
  Murphy's contributions to the popular literature of the disabled will surely rank among the highest to date. A paraplegic at a late age, after having enjoyed a long, brilliant career as a professor at Columbia and an anthropologist. Extraordinary powers of observation, generalization, and depth.
  • Paperback: ; Dimensions (in inches): 0.75 x 8.25 x 5.50
  • Publisher: W.W. Norton & Company; ; Reprint edition (September 1990)
  Will the Real John Callahan Please Stand Up?: A Quasi Memoir
by John Callahan, Robin Williams (Introduction)
 
 
  The title of this book is just the kind of gag that made John Callahan famous: he can't stand up because he's paralyzed from the neck down. This "quasi memoir" is a collection of essays, gag panels, and comic strips that reveal the weird tragedies and amusing moments that come with being America's most offensive quadriplegic cartoonist. He includes cartoons that were deemed too tasteless to be printed in the alternative weekly papers that make most of their money from advertisements for strip clubs and phone-sex numbers that appear alongside the "anything goes" personal ads. There is also a collection of irate letters from readers who didn't "get" Callahan's jokes about disabled people, and letters of praise from disabled people who did understand his humor. Will the Real John Callahan Please Stand Up? is a must-have for Callahan fans as well as for anyone with a taste for excess and amusement.

An automobile accident when he was 21 left John Callahan confined to a wheelchair, but his humor--and his spirit--have apparently known no bounds. This definitive autobiography of the cartoonist ranges wide and weird, revealing him to be at once adorable, sentimental, and depraved. The accompanying cartoons--many never-before-published--touch on such subjects as penises, death, Madonna, disability, and feminism National media publicity.
  • Hardcover: 224 pages ; Dimensions (in inches): 0.75 x 8.25 x 8.75
  • Publisher: William Morrow & Co; ; (January 1998)
  Waist-High in the World : A Life Among the Nondisabled
by Nancy Mairs (Author)
 
 
  Nancy Mairs, a gifted essayist who is fierce and funny by turns, landed in a wheelchair years ago due to degenerative multiple sclerosis that has sapped much of her strength. She bends an agile mind and sharp tongue around the daily tasks of seeing eye-to-navel with a world that clearly prefers nondisabled "normals." One candid, pained essay tells of longing to give care, not just accept it. Others describe the shifting line in the sands marking limits she could live with; teeth-grinding frustration at foolish building practices that keep even public bathrooms out of her reach; and a discomforting adventure as an undercover agent exposing a drug fraud aimed at people with diseases like MS. --This text refers to an out of print or unavailable edition of this title.

The essayist Nancy Mairs, who has used a wheelchair since 1992 because of progressive multiple sclerosis, realistically explores the problems and rewards of living with a disability in the 10 essays collected in Waist High in the World.
  • Paperback: 224 pages ; Dimensions (in inches): 0.64 x 8.28 x 5.37
  • Publisher: Beacon Press; ; (January 1998)
  Confronting Traumatic Brain Injury : Devastation, Hope, and Healing
by William J. Winslade, James S. Brady
 
 
 
Author William J. Winslade suffered from a traumatic brain injury (TBI) as a 2-year-old, when he fell from his second-story porch and landed straight on his head. He's one of the lucky ones who's recovered fully, both physically and emotionally; his only souvenirs of the fall are a three-inch scar and a dent in his skull. He warns that of the 2 million Americans who suffer from TBI each year (most of them from car and motorcycle accidents), up to 100,000 of them will die prematurely. More than 90,000 of them will face up to a decade of extensive rehabilitation, at a cost of up to $4 million each. Even a TBI as seemingly minor as a concussion can have devastating long-term physical consequences, causing seizures, memory loss, learning disabilities, and more. However sorry these problems may be, he writes, "the truly debilitating deficits" are the less-obvious emotional effects, "such as social isolation, [which] take their own insidious toll."

Winslade is on mission to spur massive attention to TBI, both from the public and the government, to increase awareness to prevent these injuries, and to improve resources for when injuries do occur. And the profiles of TBI victims in this sobering book should move anyone with a soul to action. Without slipping into melodrama, he presents harrowing tales of the dramatic personality changes that can result from TBI. Winslade ends on a practical, moving note, advocating several ways that TBI can be prevented from raising the driving age to banning pro boxing. "Consider the misery and money that we would save by cutting in half the number of Americans killed or severely disabled by brain trauma every year," he writes. Until simple preventive measures are taken and until the "long national slumber" of ignorance ends, he warns, TBI will continue to be the leading cause of disability and death in children and young adults.

  • Paperback: 220 pages ; Dimensions (in inches): 0.70 x 8.20 x 5.48
  • Publisher: Yale Univ Pr; ; (November 1999)
Beyond Ramps: Disability at the End of the Social Contract
by Marta Russell
 
 
 

What Ralph Nader did for the consumer movement in his book Unsafe at Any Speed, Marta Russell has accomplished in her riveting BEYOND RAMPS. No one, left, right, or center, who reads this book about the role of the 'disabled' and the 'terminally ill' and the way they are treated will come away unchanged. Russell has centered our attitude in a historical stream of thought, which will at first make people stunned and ashamed, and then cause us hopefully to change the way we behave.

  • Paperback: 256 pages ; Dimensions (in inches): 0.67 x 7.62 x 5.01
  • Publisher: Common Courage Pr; ; (June 1998)
  In Search of the Lost Cord: Solving the Mystery of Spinal Cord Regeneration
by Luba Vikhanski
 
 
  This work chronicles the quest for treatments for spinal cord injuries, showing how a handful of scientists around the world have made progress in restoring function to the severely injured spinal cord. Vikhanski is a science journalist who specializes in biomedical research.

In this extremely well written book, Luba Vihanski reviews one hundred years of research on spinal record regeneration. She describes the many angles from which this topic has been approached. She explains what was previously believed and what the experiments demonstrated. Many diagrams and photographs make the topic more clear. The researchers involved are not left out in the dark: You get a feeling that you know them.

This account is illuminating and very easy to read, even for a neophyte like me without medical training. One piece of advice: read the appendix on the spinal cord before and after injury before you read the rest of the book.

  • Hardcover: 286 pages ; Dimensions (in inches): 0.97 x 9.27 x 6.26
  • Publisher: Joseph Henry Press; ; 1st edition (October 15, 2001)
  Determined to Win: The Overcoming Spirit of Jean Driscoll
by Jean Driscoll, Janet Benge (Contributor), Geoff Benge (Contributor)
 

 
 

USA Today
"What makes Driscoll the best in her business is her mental toughness."


Jackie Joyner Kersee, Female Athlete of the Century, winner of six Olympic medals
"...Determined to Win is a touching and uplifting look into the life of a very special person and friend."

  • Hardcover: 224 pages ; Dimensions (in inches): 0.83 x 8.58 x 5.79
  • Publisher: Harold Shaw Pub; ; (September 2000)
  Staring Back: The Disability Experience from the Inside Out
by Kenny Fries (Editor)
 

 
 
  • Paperback: 464 pages ; Dimensions (in inches): 0.97 x 9.05 x 6.04
  • Publisher: Plume; ; (October 1997)

 

  Rescuing Jeffrey
by Richard Galli
 
 
 

This eloquent memoir is small in size but huge in emotion. To do justice to this book, read it with an open, searching heart. Then ask yourself, as this author did, what would YOU feel and what would YOU do if your child, an adolescent, was left paralyzed from the neck down? In those first days when your child couldn't even speak what would you think about? That's the painful situation author Richard Galli found himself facing after his son Jeffrey was paralyzed after a freak accident in a swimming pool, an accident which left him unable to move from the neck down.
This account is a heartfelt, painfully honest description of the first ten days after the accident (when Jeffrey is basically unconscious) and what many readers have found hard to believe is how Jeffrey's father could contemplate ending his son's life. But I understood how his understanding of the life his son had lived before the accident and the horror of the life his son would lead afterwards, in all their limitations, could lead him to contemplate his son's death. In the end, it is Jeffrey himself who is the final determinant of his life or death. I won't give away the ending but simply recommend you read this one.

  • Paperback: 198 pages ; Dimensions (in inches): 0.49 x 8.26 x 5.58
  • Publisher: Griffin Trade Paperback; ; (November 2001)
  Enabling Romance: A Guide to Love, Sex and Relationships for People with Disabilities (and the People who Care About Them)
by Ken Kroll, Erica Levy Klein
 
 
  .. reminds us that the pursuit of sexual happiness, regardless of the condition of our bodies, belongs to us all.

Considered by many to be "The Joy of Sex for people with disabilities," Enabling Romance candidly covers: shattering sexual stereotypes; building self-esteem; creative sexual variations; reproduction and contraception for people with disabilities; specific information on several different physical and sensory disabilities, including spinal cord injury, multiple sclerosis, postpolio syndrome, muscular dystropy, cerebral palsy, amputation, blindness and deafness.
  • Paperback: 218 pages
  • Publisher: No Limits Communications; ; (November 1, 2001)
  Inside the Halo and Beyond: The Anatomy of a Recovery
by Maxine Kumin
 

 
  Maxine Kumin has given us a gift. "Illness, disability, the specter of permanent damage... are deeply personal, immediate, and terrifying," she writes. Indeed. This chronicle of recovery from a cervical spinal injury sustained after her horse bolted is a courageous foray through the intense first ten months of recovery.

More than a story of pluck and resilience this book delivers joy in its reaffirmation of what nourishes us: loving relationships. Relationships with husband, son, daughters, and friends--both old and newly formed in recovery-- and relationships to the land, to its bounty. It seems impossible for someone so connected to life to ever give up on it easily. Kumin narrates, in journal form, her struggles and how she didn't quit.

Kumin's life unfolds in this book. We see the stoic formed when her adored father "hovered in the doorway" when she was ill as a child; the horse lover who takes "deep pleasure" in seeing her horses in action; the gardener describing cauliflower and broccoli lovingly planted in May from seeds started on living room windowsills; and the poet who says of her farmhouse, "All of my doors are held open by stones."

The mother and wife are here, too. Kumin's daughter, Judith, spends months with her mother. It is comforting to read of a supportive, caring, daughter/mother relationship that flourishes during a time of great stress. Kumin is not afraid to tell us about moments of guilt and despair: "How I feel about my accident is quite simply that I screwed up everybody's life by living through it."

All this is written within a flowing narrative style that is groomed by this writer's cumulative knowledge of what is important in language and life.

Maxine Kumin is one of my favorite poets. I cheered when this well-paced chronicle lead to a spring when this writer was finally back in the "peaceful kingdom" of her farm in New Hampshire. I am grateful the author has offered a book that allows us to witness her struggle as she looked inward and reached out.

  • Paperback: 208 pages ; Dimensions (in inches): 0.57 x 7.05 x 5.52
  • Publisher: W.W. Norton & Company; ; (November 2001)
  Spinal Cord Medicine
by Steven, Md. Kirshblum (Editor), Denise, Md. Campagnolo (Editor), Joel A., Md. Delisa (Editor
 

 
 

Spinal cord injury or disease can result in severe disability and can permanently alter a person's future; nevertheless, many patients with damaged spinal cords lead long and productive lives with the help of modern care. Even high cervical lesions can be managed when great effort and attention are devoted to the many medical consequences of spinal disease; Christopher Reeve is perhaps the most public example of someone who is leading a meaningful life despite a devastating spinal injury. Furthermore, there is growing excitement that research advances in areas such as stem cells and neurotrophic factors will facilitate spinal cord regeneration and functional recovery. For these reasons, Spinal Cord Medicine is a timely review of the causes and consequences of spinal cord disease. Spinal cord injury is fortunately a rare occurrence, but because improved management has increased life expectancy for patients with injured spinal cords, there are now approximately a quarter of a million such patients in the United States. Care of these patients requires a multidisciplinary approach that frequently involves emergency room physicians, orthopedists, neurologists, neurosurgeons, urologists, physiatrists, and persons providing psychosocial support. The editors of Spinal Cord Medicine stress the need for and importance of a coordinated approach. The book encompasses all aspects of spinal injury. The initial seven chapters present the history, anatomy, imaging, epidemiology, and general acute management of spinal cord injury. The next 11 chapters deal with medical aspects of spinal cord damage, such as pulmonary management and the neurogenic bladder. Chapters on rehabilitation are followed by nine chapters dealing with diseases that cause nontraumatic spinal cord injury. Overall, the authors have done an admirable job of presenting all aspects of spinal cord injury.

  • Hardcover: 655 pages ; Dimensions (in inches): 1.50 x 11.25 x 9.00
  • Publisher: Lippincott Williams & Wilkins Publishers; ; 1st edition (December 15, 2001)
  Management of Spinal Cord Injury
by Cynthia Perry Zejdlik, Cynthia M. Zejdlik
 
 
  British Columbia Rehabilitation Society, Canada. Textbook for rehabilitation nurses and other rehabilitation specialists. 48 Multidisciplinary contributors. DNLM: 1. Spinal Cord Injuries rehabilitation.

The best so far. "Must read" for nurses working in Spinal COrd Injury areas - acute or rehab. "Must have" book for orthopaedic/spinal units.

  • Paperback: 723 pages ; Dimensions (in inches): 1.50 x 11.50 x 9.00
  • Publisher: Jones & Bartlett Pub; ; Second Edition edition (January 1992)
  The Child With a Spinal Cord Injury
by Randal R. Betz (Editor), M. J. Mulcahey (Editor), American Academy of Orthopaedic Surgeons, Shriners Hospitals for Crippled Children Symposium
 
 
  Aims to provide a contemporary review of pediatric SCIs in order to disseminate standards for optimal care of affected children and adolescents, identify areas of deficient knowledge, and encourage research. Contains 68 contributions in sections on etiology and prevention, management, medical issues, orthopedic problems, upper extremity management, rehabilitation, discharge and transition, habilitation, research and technological applications, and special considerations. Identified as the second in a projected series of symposia on the subject sponsored by Shriners Hospitals (though the series is not named). Annotation c. by Book News, Inc., Portland,
  • Hardcover: 888 pages ; Dimensions (in inches): 1.75 x 12.75 x 7.50
  • Publisher: Amer Academy of Orthopaedic; ; (February 1996)
  Force a Miracle
by Darryl C. Didier, Mike Ditka
 

 
 

All of us can become disechanted with life on occasion, but Force a Miracle "forces" you to look at life from a different perspective. Every so often a book comes along that begs you to read it. This is that book! Filled with everyday observations that make you stop and think just how lucky you are, it's part memoir, part self-help, part funny papers, ALL inspiring. Check it out whenever you get to thinking. "We don't know what real problems are." This book really proves that. A testament to the inner human strength to overcome extreme adversity, to triumph and continue a worthwhile and self-rewarding life. A story to make us appreciate life and take nothing for granted. Darryl is truly an inspiration. Extremely well written infused with a self-deprecating sense of humor - a must read!

  • Paperback: 240 pages ; Dimensions (in inches): 0.64 x 9.24 x 6.02
  • Publisher: Writers Showcase Press; ; (June 2002)
  Spinal Cord Injury: Patient Education Manual
by Aspen Reference Group
 

 
 
  • Paperback: 500 pages ; Dimensions (in inches): 1.25 x 11.25 x 8.75
  • Publisher: Aspen Publishers, Inc.; ; (January 1998)
  The Official Patient's Sourcebook on Spinal Cord Injury: A Revised and Updated Directory for the Internet Age
 
 
  This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to spinal cord injury, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on spinal cord injury. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Spinal Cord Injury: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Spinal Cord Injury; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Spinal Cord Injury; Chapter 5. Patents on Spinal Cord Injury; Chapter 6. Books on Spinal Cord Injury; Chapter 7. Multimedia on Spinal Cord Injury; Chapter 8. Periodicals and News on Spinal Cord Injury; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Spinal Cord Injury; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; SPINAL CORD INJURY GLOSSARY; INDEX. Related topics include: Cervical fracture, dislocation, Compression of spinal cord, Spinal cord compression, Spinal cord injury.
  • Paperback: 308 pages ; Dimensions (in inches): 0.54 x 11.00 x 8.25
  • Publisher: Unknown; ; (October 2002)
  Beyond Sympathy: What to Say and Do for Someone Suffering an Injury, Illness or Loss
by Janice Harris Lord, Eugene D. Wheeler (Editor)
 

 

 

 

 
 

Nobody makes it through life without experiencing loss. Understanding the common emotions that accompany losing someone is hard to do. A book like this is a MUST HAVE!!! I highly recommend this book!!!
 

  • Paperback: ; Dimensions (in inches): 0.50 x 8.36 x 5.42
  • Publisher: Pathfinder Publishing of California; ; 2nd Revision edition (June 1990)

SCI BOOKS PAGE 1  ---  SCI BOOKS PAGE 2 (HERE)   ---   SCI BOOKS PAGE 3

Click here to tell about this page to a friend.